Nearly entering my Month-7 in TSW! Hooray! Things are ok. A quick general update:

• I sleep better nowadays though do wake up several times itching and takes 30mins to 2 hours to get back to sleep. My boys have got the fever these two days so have been up at night looking after them, but their temperature is going down  
• Still vacuuming daily with those billions of dead skin flakes flying around
• Using Dr. Fukaya’s lotion everyday if I remember.
• Still drinking TCM daily.
• I’m not perspiring crazy now which is good! I still sting a little bit when I perspire when I get hot and also when I get out of the shower if I have raw skin from scratching rashes.
• My eyes are good. Have my follow-up appointment in two weeks time to see if laser is necessary for left eye which is still hazy after surgery. Have been a bit. I have noticed when I stare at something for longer times I get a bit of a droopy eye in my right eye and I’m freaking out that it’s a side effect of cataract surgery (ptosis) and it’s pretty common
• Still not moisturising and going well
• I still eat crap like junk food I gotta stop cos I think it’s contributing to my flares as I drink instant soup which has a bit of dairy, bread with cheese, chocolates, ice-cream… I’m allergic to cows milk so yeah. naughty me!
• have updated Photos page

More specifically….                                                         
HANDS & FINGERS:
They are actually getting worse I think and my fingers are bloated? maybe it’s summer and fluid retention? My ring is pretty tight on my ring finger and it actually makes my finger itchy. or maybe I’m just fat! I have gained a few pounds
The deep cuts are SORE it’s hard, as I say previously in my post, to do chores and look after kids when I need to wash my hands etc all the time but leaving it open actually heals faster than sticking a plaster on it and I’m so sick of plasters they come off so easily after being wet. Even expensive waterproof plasters I buy so I’m just like ok fuck it sometimes it does get very sore and I nee do stick a plaster over it so I can just sleep or else the pain actually gets me up!

ARMS & LEGS:
The flare on my arms are dying down VERY slowly but legs are still very itchy and am still flaring I think I still scratch it lots every day and night. it sux because it’s summer here and I really want to wear short sleeve and shorts!!! but I dunno I feel very disgusting showing these rashes I feel like people will think I’m contagious. I mean my face is worse enough LOL seeing these rashes along with my face will freak people out more I know a lot of TSW warriors says things get better during summer but I’m wondering if winter will be better for me cos it will be a year off steroids for me then and I’m born in winter so in a way I’m used to the cold

BODY & CHEST:
Chest did flare when arms and legs flared as well but have died down now and side of waist is pretty smooth new skin at the moment. I only have a bad patch which itches pretty bad when I perspire just below my belly button. It’s also cos I’m fat I have to admit (fuck) lol that my flabs are digging into my pants which makes it sweat more and itch more. so I should really tone up my waist!
FACE:
Noticing more hair coming out! Yay! Actually my eyelashes are all broken and short now I couldn’t see before with my cataract eyes but now it’s like and no eyebrows oh wells they will grow back one day I guess ….
My forehead is looking much better tho VERY DEEP wrinkles. I wonder if I can get rid of them with the Dr. Fukaya lotion
My face is all scabby again because each time I shower my skin dries up and it get itchy and I can’t help it but slap and scratch my face then it bleeds and goes raw and dries up. After putting on Dr. Fukaya’s lotion it actually absorbs very quickly then my skin is even drier – in a good way tho. I mean I can feel that underneath my skin is hydrated and my dead skin is coming off more easily but if it was just water the dead skin wont come off that easily. So the drier the better for me I feel. Nowadays I only shower 1-3 days ok I know it’s gross but it works for me in terms of developing stronger skin n not drying out too much showering everyday
NECK:
Still itches and scratch crazy when perspiring but doesn’t seem to flare it does hurt when I scratch too deep. but not more oozing and very minimal flaking




I went to my nieces birthday party last week and a couple of people couldn't help but stare at me…. I was upset for a few moments but then just got over it. Still these things will upset me even though how many times I’ve told myself that I need to be strong and screw others but it really hurts when u get discriminated right? I guess I just have to think that they probably felt sorry for me and wanted to ask what's wrong but was too chicken too. Anyway, I have my boys as my motivation everyday ♥


That’s it for now. I’ll probably take a rest from blogging as I need to concentrate on my thesis! All the best TSW fellows and carers! As always stay strong and strive on!
xxx
ahfaye