Angry. Upset. Scared - Atopic Cataract

A very emotion day for me today. I went to get my eyes checked today with a opathmologist. I was prepared to be advised I need surgery for t...

Read more
Entering Month-6!

Entering Month-6!

17 Nov 2013 Went to a family’s house warming party today. This is what I look like when I go out – hat sunglasses and hair down. It’s bloo...

Read more
Month 5 - a bit of everything update

Month 5 - a bit of everything update

hi all, I hope warriors and carers of warriors are doing ok. I’ve been ok, the same or worse maybe. I am starting the 5th month of TSW. Sin...

Read more
Month 4 – Day 103

Month 4 – Day 103

Nearly hitting 15 weeks of topical steroid withdrawal (TSW). It’s been a bit of a emotional roller coaster ride for me lately. Ups and downs...

Read more
Family day out! Day 81

Family day out! Day 81

I had the courage to go out on a family day out today for the first time since TSW. It was a Teddy Bear's Picnic run by a local communit...

Read more
RAGE day–1 step forward, 2 step backwards

RAGE day–1 step forward, 2 step backwards

Didn’t sleep again. Itched all night. Weeping, oozing, dead skin everywhere. Grrr!! Next day with swollen eyes and so much dead skin on my e...

Read more
Day 69

Day 69

Home alone. Baby-free. Room vacuumed. Windows opened. Changed bed sheets. Sunny outside. Swollen dry eyes. Dry and itchy. Weepy back and w...

Read more